EVA Research Program Patient Registry

AGE: 0 – 100 years old
SEX AT BIRTH: All
Healthy Participants: No

TYPE: Interventional Study
CONDITION: Enlarged vestibular aqueduct syndrome (EVA)

PRINCIPAL INVESTIGATOR:
Todd Otteson, MD, MPH
LOCATION: UH Rainbow Babies & Children’s

Study Purpose

Despite being a common cause of hearing loss in children, there has been very little research done on enlarged vestibular aqueduct syndrome, or EVA. By signing up for our research registry and sharing their experiences with EVA, participants may help researchers find answers for those affected by EVA. Researchers want to find the answers to questions such as:

Can swimming and playing sports affect children with EVA?
Can flying in an airplane cause or worsen hearing loss?
How does EVA affect a child’s balance?
Should steroids be given for concussions in EVA patients?

Who Can Participate

Participants of any age with self-reported diagnosis of EVA can participate in this patient research registry.

I'm Interested! Fill out our online form.

Study# IRB# 04-16-06.