Neurofibromatosis Type 2 Treatment at University Hospitals

Expert Care and Innovative Solutions

University Hospitals Neurofibromatosis Type 2 (NF2) Center offers unparalleled care by combining the experience, expertise, technical abilities and resources of recognized authorities to devise personalized treatment plans that enhance each patient’s quality of life.

Neurofibromatosis Type 2 is a genetically inherited disorder that results in nerve sheath tumors, which can affect balance and, at times, auditory or facial nerves. In addition, other types of tumors may arise in the central nervous system or spinal cord. This disease, which occurs in about one in every 25,000 live births in the U.S., can eventually result in profound hearing loss and some facial paralysis. Other symptoms can include balance problems, cataracts at a young age, changes in vision, headaches and ringing in the ears.

Neurofibromatosis affects males and females equally and only one copy of the affected gene is needed to get the disorder. Therefore, if only one parent has neurofibromatosis, their children will have a 50 percent chance of developing the condition.

UH Neurofibromatosis Type 2 Center is comprised of a multidisciplinary group of surgeons and specialists in neurosurgery, neurology, oncology, otolaryngology and genetics. Our team also includes specialists and sub-specialists in all related areas, including radiology, ophthalmology and radiation therapy, as well as various supporting services.

We offer standard and innovative treatment options including management through medication, radiation or surgery. Hearing rehabilitation using auditory brainstem implants (ABI) or cochlear implantation (when appropriate) are available as well.

Because NF2 can impact hearing, patients and families may have difficulty coping with this disorder. To help increase their understanding and make them more comfortable, we provide information about treatment options, keep them updated on the patient's progress and encourage them to ask questions. The goal is to help patients heal both medically and emotionally, and enhance their overall quality of life.