Primary Ciliary Dyskinesia Center

HOSPITAL
University Hospitals Rainbow Babies & Children’s Hospital

ADULT PROGRAM DIRECTOR
Stephen Strausbaugh, MD

PROGRAM COORDINATOR
Virginia Gonzales, RN 216-844-3267

KEY CONTACT
Alfreda Eff 216-844-3267

APPOINTMENT LINE
440-879-2985
For hospital transfers, please call 216-844-1111.

Conditions Treated
Primary ciliary dyskinesia
Bronchiectasis
Heterotaxy

Diagnostic Procedures
Fully accredited nasal nitric oxide testing using PCD Foundation standards
Nasal epithelial brush culture and electron microscopy (when indicated)
Bronchoscopy (not routinely needed)
Genotyping and exomic analysis

Therapies
Specialized respiratory therapy for PCD and bronchiectasis
Leading-edge antimicrobial and anti-inflammatory therapy
Advanced interventions (bronchoscopy, thoracic surgery, lung transplantation) available, though not routinely needed
Clinical trials for novel interventions available through the PCD Foundation

Distinguishing Features
Only center for primary ciliary dyskinesia care in Ohio fully accredited by the PCD Foundation
One of the first PCD centers in the country
Microbiology lab qualified for PCD and CF cultures
Highly collaborative team, including pulmonology, ENT, surgery, genetics, cardiology, neonatology, anesthesia, immunology, pathology, nursing, respiratory therapy, research and other PCD-related specialties