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Sickle Cell Disease Status Study

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A prospective study to evaluate the disease status in patients with Sickle Cell Disease (GRNDaD: A Globin Regional Network for Data and Discovery)

  • Sex at Birth: Any
  • Age: Child (Birth - 17), Adult (18 - 64), Older Adult (65+)
  • Accepting Healthy People: No
  • Type: Others
  • Trial Phase: NA
  • Conditions Being Studied: Sickle Cell Anemia

Study Purpose

This study is a registry for patients who have sickle cell disease (SCD), including pregnant women. A registry is a database of patient health and demographic information that is used to understand how a disease affects different people based on, for example, their other medical conditions, their age, or their treatment regimen. To protect patient information, this registry does not contain names or medical record numbers.

Principal Investigator
Amma Owusu-Ansah MD
Department/Division
Medicine (Hematology/Oncology)

Locations

UH Cleveland Medical Center
11100 Euclid Avenue
Cleveland OH, 44106

  • UH IRB: SITE00000230
  • StudyID: SITE00000230
  • ClinicalTrials.gov: N/A
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